Tuesday, October 28, 2008
He loves being "snug as a bug in a rug"! His teacher said they have a blanket item at school that he loves when he needs a break...We had this golf green that he has been getting out lately...so I decided to roll him in it and he loved it. So I am going to incorporate that in ways to calm him when he is getting upset.
This kid also has become so independant...He is always wanting to make eggs. He has to help with every little step.
She got a convaid safari. It reclines and tilts and seems pretty comfy. It is a lot lighter to get in and out of the car. She also got a new headrest for her wheelchair. This we will use to help her build her head strength back up.
Saturday, October 18, 2008
The Strength of an Egg
by J. Freitag
Parents of children with a terminal illness, are often referred to or viewed as having strength "like a rock." Albiet flattering, it isn't quite true. It is more like the strength of an egg. An egg, you ask? Yes!If you'll think about it, you'll see my point. An egg has a polished, smooth outer appearance, with no cracks or weak spots visible. It seems almost inconceivable that the inside might not be so smooth or solid.Most children, at some point are shown the famous egg trick. An egg set at just the right angle can withstand enormous amounts of pressure and cannot be cracked or broken. Yet the same egg, tapped gently at an ever slightly different angle, will break. The contents, once so neatly concealed, will come spilling out. The no longer perfect shell will be crushed. It looks so fragile that it seems inconceivable that it ever held any strength.A rock, on the other hand, is solid all the way through. To break it is almost impossible. If you succeed, you will find that there is nothing inside but more rock.It takes a lot more than pure hardness to hold the hand of hope. Parents of [medically fragile] children are not solid all the way through. We hurt, we fear, we cry, we hope. It takes a very careful balancing act to keep the shell from being shattered. "Balancing an egg" while running a household, going for doctors' visits and hospital stays, keeping the family together, and holding on to the constantly unraveling ties of your sanity can be very tricky indeed! Occasionally, the angle will be off and the shell will break, shattering hope and all the neatly secured appearances of a truly fragile existence.Unlike Humpty Dumpty, though, parents of medically fragile kids will pick themselves up and put themselves back together again.
Thursday, October 16, 2008
Tuesday, October 14, 2008
The kids enjoyed playing with our early Christmas gift, a Wii. It is a lot of fun!
The kids also enjoyed just being kids, playing outside, jumping on the trampoline and wrestling around!
Thursday, October 9, 2008
Kennedy still has her cold, but is doing a bit better. Wednesday night she slept through until 6am and only coughed for about an hour. Last night she woke up a couple times but was able to go back to sleep after a half hour or so. Hopefully getting out in the nice weather this weekend will help get rid of this cold.
We also got her hip xray results back...everything is perfect. No problems...so her crying the other day was just due to tight muscles.
Update with Zach...he is still a monkey. Actually this week he has finally started enjoying something new, fresh fruit. My picky kid came over to the fruit bowl the other day and picked out an apple and started eating it. He ate almost the whole thing. I was shocked as he has always refused to eat fresh fruit(and most canned fruit). Today he grabbed a clementine and tried cutting it open...so I peeled it and he at at least half of that. It is very nice having him try new things. Now we have to watch out for a new way of him trying to show his independance....he tries getting a sharp knife out to cut the fruit himself!
Monday, October 6, 2008
Corie and Cortnie, Krista and Tracey visitted yesterday. The kids had a good time. They had some fun outside riding around on the 4wheeler. Watch out for Krista...she might just run you over. She had a lot of fun on Zach's little wheeler but she has to watch out for things in front of her...lol. Zach didnt want to come in he was having too much fun. They came in and played in the house, visitted with Kennedy and kicked my butt playing Rummy. The twins are growing up so fast...next weekend is homecoming. I cant believe they are old enough to be going to a formal! Hope they have lots of fun!
Sunday, October 5, 2008
(moral of the story....dont sleep with Zach or you might wake up missing an arm...lol)
Thursday, October 2, 2008
We are on hold with her stander. The doctor wants to get some hip xrays before we start using it more. He doesnt think there is anything wrong, but just wants to be sure. Otherwise he just gave us some stretches to do with her to help her left leg and foot. We might try some botox, but we want to meet again in his seating clinic and discuss whether some of it is just how she likes to position herself.
Wednesday, October 1, 2008
He has been doing well. He had a cold last week, but seemed fine. He had a well check up and ended up having an ear infection. Otherwise seems pretty healthy. He is getting skinny though, but has stayed pretty much the same on the growth chart(around 55-60th% for both weight and height).
I talked to his teacher a little on Monday. She said he is doing really well this year! That he is attending better, talking more and everything!